Hello Again, Updated Conditions List + Future Health Goals

I continue to write on this blog periodically but it seems I never get to finishing a draft and posting it, so here we go ... I shall write you a quick little update (this took me probably two hours - fail) and make sure I post this one tonight. 

I have taken a big step back from my health. What? How is that possible? I know, I know, it makes no sense. It's not that I'm ignoring things, although I am at times, it's just that I got to a point where I couldn't balance my health problems with my life so I stopped taking care of myself as much and focused on my child and improving other facets of my life. Maybe that's it, I couldn't fix myself so I tried fixing other things. 

SO, I am trying to make it a priority to include a little bit of "taking care of myself". I need to get back to see a list of different doctors and I need to further probe into what is going on with me. I just can't go to so many appointments. It becomes exhausting and it becomes a full time job. I'm hoping I can maybe see one doctor / specialists again at a time. 

I am starting here with updating my condition list. As per my blog way back when this was where I was at with what I have been diagnosed with (click here). Below I shall update my list for all of you and talk about some projections on where I want to go from here. 

I am coming upon my 8 year anniversary in January 2019 and I have learned a lot. If you have any questions on the following disorders, let me know and I can see what I can help you with. Here we go. This is my list of health concerns over the years. I've added some things I missed:

My Health Concerns:

1) Asthma

2) Chronic pneumonia, bronchitis, strep, chest infections and sinus infections 

3) ADHD (Attention Deficit Hyperactive Disorder)

4) IBS (Irritable Bowel Syndrome)

5) Concussions - including post concussion syndrome (my trigger incident to my pots)

6) Uterine Fibroids 

7) B12 deficient

8) Migraines

9) Hyperadrenergic POTS (Postural Orthostatic Tachycardia Syndrome)

10) Pre Cervical Cancer (high grade cells - stage zero) - Latest results are all clear!!

11) TMJ (Temporomandibular Joint Disorder)

12) IC (Interstitial Cystitis or painful bladder syndrome)

13) Gilbert's Syndrome

14) EDS (Ehlers Danlos Syndrome)

15) MCAD or MCAS (Mast Cell Activation Disorder or Syndrome)

16) Mandibular Tori (could of had before POTS too)
17) Reynaud's Disorder
18) Hyperhidrosis

Health Concerns to Look into:

19) Gluten Intolerance

20) Lactose Intolerance

21) Brain Inflammation

22) Endometriosis 

23) Brain Inflammation

24) CFS?

Good news - I have an amazing new family doctor. She's great. I should go in and see her again to check out my weight gain (😔), pain and other testing. We really need to figure out about Endometriosis as the pain is so horrible lately. It might be a struggle and I don't know if there's anything to help to improve it?

Reynaud's Syndrome - I found this out while I was breastfeeding my little one and was having problems. My medication for MCAS was countering and making it worse so I went off that med. I will be going back on it again soon.

MCAS/MCAD - I need to look into this further and get better treatment going. I need to start taking my reactine every night again and see if the other med they suggested is covered yet. I would also like to get some allergy testing done which would show me if I have a gluten or lactose intolerance as well. Hopefully I can find some answers to allergies and help avoid continuous reactions.

POTS - I am starting to try to get back on my meds again. Currently I am med free as I had a baby and had to go off them and stay off them during pregnancy and while I breastfed. After finishing breastfeeding I kept trying to go back on them and the side effects were not working out well. I kept feeling very faint going back on clonidine and so sleepy. I will try to start with Florinef again and then soon add the Clonidine. I hope the Florinef doesn't make me bloat again and gain more weight. :( Hopefully Clonidine with counter react with the Florinef)

IBS + Colon Cancer - My mother gets tested for cancer through colonoscopies. My doctor said I should start this soon based on my mother.

B12 - I need to take these pills. I'm so bad now that I don't take other meds at the same time.

Brain inflammation - I really need to ask my neurologist about this again. Why was it happening and what were my MRIs checking for? Why do I no longer get MRIs? Did the mass ever change after my head injury from my fall?

CFS - I don't know. Do I have it or not? There's no real testing. I think I may throw this one on the back burner.

Above all my future goal is to keep moving and pushing farther. I was not able to move much for a long time without being horribly ill afterwords but I kept pushing myself. Everyone always has to check with their doctors to see what is safe but I found that moving helped me the most, over time. I have painstakingly improved my movements. I am proud to say I can hold my head up straight now instead of staring at the floor all the time so that I didn't pass out. I went for a few small runs in Australia (when I went to introduce my daughter to her extended family on her dad's side). I haven't been able to run since before my accident without almost immediately having to stop due to almost fainting/blacking out/seeing stars. I also jumped on a bike once this year - yes a real bike that moves, not just my recumbent stationary bike. This is not to say I don't get sick afterwords but days at home when I am bed bound - I feel even worse now. Moving helps my blood flow and health. So as much as I can I still keep pushing it. I wish I could be 100% and I still have horrible days but I am inching forward. As my doctor told me, you may feel horrible sometimes doing it but it won't kill you. I'm not sure if he's correct on that once as I have definitely felt dead after some "workouts". For me though, even just wiggling and moving my legs or body in some way has helped. I find ever little bit has counted. I also say this all that with a caveat that for years and years and certain time periods, I could not work out or move. 

So that's where I am at. Here's some visual love because I write and talk too much. Love you all! Hope you are finding some happiness in life. 

I have been coping with gardening. It makes me see beauty in my life when all else fails. I try to ignore the plants I kill and all the weeds. LOL!

Here's an updated photo of me and my sweet lil' gal from last month. We are actually at the beach.